tag:blogger.com,1999:blog-2593256949311598537.post2215945742434858827..comments2023-05-28T02:05:07.525-07:00Comments on The Wilder Coast: go hide and be braveMelinahttp://www.blogger.com/profile/16957983479473967228noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-2593256949311598537.post-26821420069393121502016-05-26T20:35:46.681-07:002016-05-26T20:35:46.681-07:00Sometimes we have to say it out loud because holdi...Sometimes we have to say it out loud because holding it is too much to bear. Sometimes those words help someone else through a confusing, scary time. You keep on writing-and I'm sending love to all of you-the beautiful boys gone too soon, their families, and their friends. Ashleynoreply@blogger.comtag:blogger.com,1999:blog-2593256949311598537.post-14760456302026716942016-05-26T19:11:47.594-07:002016-05-26T19:11:47.594-07:00I understand needing to get the thing about their ...I understand needing to get the thing about their deaths out. God do I. And just reading it makes me feel like I got kicked in the stomach because I know that goddamn feeling about hearing of someone's death too well. Whitewater and otherwise. But you know that. Our conversation in the coffeeshop showed that we have similar feelings on the whole sad thing. Just...ugh.<br /><br />I wish I wasn't so insanely busy right now. I'd drive down and just sit and talk with you and we could share photos and relive past adventures and pass the time sitting on the porch or otherwise just relaxing. I wish I had a teleporter and I'd zap you to Canaan to Dave's beautiful house. We could sit in the loft and indulge in tea; sit on the back porch and drink coffee and listen to the birds; we could wander through the field picking wildflowers, identifying them with a book; swing in the hammock and talk and laugh; and nap...because naps are basically the greatest thing ever. <br /><br />I'm so glad you were able to write today. Thank you. Let me know, please, if I can do anything for you. If you have snapchat I am amazingly adept at sending completely silly things that will make you laugh if you need some laughter. <br /><br />Hugs. Love. And all of the positive feelings, vibes, and karma to you. <3Liz Stouthttps://www.blogger.com/profile/18267806576736655184noreply@blogger.comtag:blogger.com,1999:blog-2593256949311598537.post-32345786449800111012016-05-26T16:46:04.889-07:002016-05-26T16:46:04.889-07:00You know that song "I hope you dance"? J...You know that song "I hope you dance"? Just like those lyrics go "when you get the chance to sit it out or dance.. I hope you dance" Today I am glad you wrote! The one time I wrote a few posts for a long defunct personal blog some anonymous commenter told me to divorce my husband. Lol. I know you have thicker skin than me and Lyme is riddled with controversy but trust me when I say anyone who has been sick knows. They really do know. No explanations necessary. <br /><br />The blankness of the hours going by, the desperation, the inexplicable symptoms, the run around from doctors, the self doubt, the manic researching, second guessing the doctors then trusting them it's all part of this path to healing. I just want to give you a hug and say I might have been harsh also in my comments but please know it has nothing to do with you (I just hate trying to be sugary optimistic all the time) I am glad you are writing. Hold on to that. Srihttps://www.blogger.com/profile/01022766956861831195noreply@blogger.comtag:blogger.com,1999:blog-2593256949311598537.post-35676050061037815762016-05-26T16:21:42.356-07:002016-05-26T16:21:42.356-07:00You are always on my mind. Reading your blog thou...You are always on my mind. Reading your blog though this horrible disease has been so eye opening. This is a serious disease that needs way more research. This season of your life is so different than how you imagined it would be, but I think this story is going to be so needed in the world. I know your healing is coming and your babies will follow. My heart is with you. Bethanyhttps://www.blogger.com/profile/14576088488959012535noreply@blogger.comtag:blogger.com,1999:blog-2593256949311598537.post-6914772599881042512016-05-26T16:04:09.426-07:002016-05-26T16:04:09.426-07:00Hi Melina, I would like to tell Amanda that my hus...Hi Melina, I would like to tell Amanda that my husband and I had five miscarriages before our treasure arrived. She's a thriving happy healthy ten year old now. There is hope for you, sweet Amanda, and for you to Melina. I know what love you already carry in your heart for your future children. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2593256949311598537.post-23796157541760812912016-05-26T15:50:19.462-07:002016-05-26T15:50:19.462-07:00Amanda, I am so very sorry to hear this. I see you...Amanda, I am so very sorry to hear this. I see your pain and I'm here for you (thewildercoast@gmail.com) if you need to vent to an online friend. <br /><br />So much love to you.Melinahttps://www.blogger.com/profile/16957983479473967228noreply@blogger.comtag:blogger.com,1999:blog-2593256949311598537.post-67672456170257635942016-05-26T15:44:35.327-07:002016-05-26T15:44:35.327-07:00Hi Melina -
Your last line resonated with me dee...Hi Melina - <br /><br />Your last line resonated with me deeply. I have had 4 miscarriages in the past 2.5 years and there is so much emptiness inside my head and heart and womb. I have done everything to make this sadness easier to bear, but there is a blankness that covers so much of my life. I try and reason with myself that it will all be worth it some day because there is no answer to the "whys". Why me? Why now? <br /><br />I wish for you hope, healing and light.Amanda in Seattlenoreply@blogger.comtag:blogger.com,1999:blog-2593256949311598537.post-17632354001361813422016-05-26T15:32:48.228-07:002016-05-26T15:32:48.228-07:00Hi LAH, I have weekly labs drawn that tests everyt...Hi LAH, I have weekly labs drawn that tests everything from my blood to my bone marrow to my liver. I also see an opthamologist- in fact I have quite the team of doctors that extends beyond my Lyme Literate doctor. I do appreciate your concern, but you must understand that currently, there is no regulated standard of care of Chronic Lyme. That's one of the reasons I am writing so openly about all of this. There needs to be more research and there needs to be a better option for treatment and for a cure. Until that day, the best thing we can do is find a doctor we trust and stick to their protocol. Melinahttps://www.blogger.com/profile/16957983479473967228noreply@blogger.comtag:blogger.com,1999:blog-2593256949311598537.post-13698165993999459802016-05-26T15:22:13.500-07:002016-05-26T15:22:13.500-07:00Your eyes should never be turning yellow. This isn...Your eyes should never be turning yellow. This isn't a sign of detoxification, but rather that your liver is inflamed (likely from all of the meds you're ingesting). Please be sure to follow up with a hematologist/gastroenterologist. The last thing you need is to irreversibly damage your liver, following through on protocols that aren't regulated. LAHnoreply@blogger.com